Monday, November 12, 2012

I just got back from errands and realized I forgot all about the finals of the end of year championships that started at 3pm, and now it's 5.  Fortunately there is a lot left.  The Djoker won the first set in a tiebreaker, but Roger is up a break in the second. 



Glad you laughed.  After I sent that one I was worried that it was all way too gross for a refined woman such as yourself.  Happy to see I was wrong about that!  My British friend was not amused...  I finally did get my cards, and now am going to do a little envelope stuffing tonite.  I was at the beer store, and this slim young suburbanite pulled up and parked in the handicapped space.  When we were both leaving I got a chance to rag on her.  She said she had to park there cuz there was a line of 5 cars down the side of the store and she had no place else.  She would have had to walk maybe 70 or 80 feet to the door of the store.  So I said, um, you CAN walk, can't you?  It may have escaped you, but these spaces are for people who can't walk very far.  Like me.  I have 26% lung capacity though I don't look it, and I don't park in the handicapped spaces because I don't have a placard, yet, and it is big time against the law.  People like you make me sick.  If I were leaning on my walker with my nose hose for Oxygen and you pulled up ahead of me and parked in the HC spot, would you still be telling me you "had to" park there, when really you just didn't want to walk a few extra feet?  When I get my card, I'll really lay into people like you! 

Well, I wish I said all that, but actually just said you know this is a handicapped spot don't you, and laughed when she gave the lame excuse.

I was looking at ads for elderly community apartments, and found one in Cambridge between Central and Harvard Sq.  Studios and one bedrooms mostly with balconies.  Some are subsidized rents, but I couldn't get a hold of a live human to find out about them.  It could be as little as 8 or 900 bucks I think.  But it's probably just a tease, and they have a 5 year waiting list.  I'll keep looking though.  Since all Chris was going to do for me is not RAISE the rent from the last tenant, I think I can do better.

Roger was serving for the second set, up 40-15, but the Djoker came up with 4 straight points, and Roger has to serve to get into a second set tiebreaker.  High drama.  I can't believe it.  Djoker broke Rog to take the second set, the match, the championship, the title of number one for the year. and a spot in history!  I was sure there would be a third set.  Roger gave a very gracious speech, and Djoker too.  These guys are really great.  On the way home, I sent to a couple stores to check out over the ear headphones for better sound when I am at home, now that I got the amplifier.  At best buy they had a few that you could listen to their canned music with, but not try them with your own player.  I told the guy I'm not paying 300 bucks for something I can't even test out with my own music that I'm going to use it for, and left.  At staples after I got my cards, they had a display of phones that you COULD use with "your device" as they say.  So I tried them.  The thirty buck ones were not too bad, actually better than the 50 buck ones.  The  200 and 300 buck ones were a little better in the high end, but they all had this overpowering, awful booming bass.  So I told the guy that the 300 dollar ones were marginally better than my two dollar ones I'm using now. 
He was like, well you know you're paying for the names on these.  One was "by Dr. Dre", and the other was from Ludicris.  Now remember, these are two Rappers who don't even make MUSIC.  I said yah back in the day, we paid for names too, but the names were Dr. Koss, and Dr. Sennheiser.  Then I admitted to being a crusty old fart and went home.

Treadmill was fine today, haven't used the meter yet.  I woke up with a ton of phlegm, and took about an hour to get it under control with the Mucinex, the nebulizer, and three inhalers.  Didn't hear back from Stacey either, come to think of it.  Hope they haven't ruled me out for not following up for a while.  If they did, I'll just have to go somewhere else.  As it happens, Duke, in NC takes a lot of cases, including second transplants who get rejected elsewhere.  They seem to get done in a matter of weeks or a couple months there too.  If I had to I could find a flophouse in downtown Durham and do the process there, and have my family there as support.  They're gonna love that!

Sorry you're not feeling well.  If you're going to drink, you have to train for it.  By drinking.  Every day.  There are no shortcuts.  For now, just puke and get it over with and go to bed.  Feel better and talk later. 
You put a smile on my face reading your reaction to my musings.  Actually I did fall asleep while sitting up a couple of times today.  I know, I'm kind of sleep deprived.  This morning started out a little weird, when a woman from India hit me up on the facebook chat, and wanted me to find an old lady for her son to have sex with.  Well, I had a couple of questions about that.  First off, this same woman "friended" me the day before.  I said OK cuz I thought it was some Alpha person wanting to connect.  This happens all the time.  So yesterday we bantered a bit before she realized I wasn't going to bite on whatever her scam is, and she got mad and defriended me supposedly.  Then this morning, she does it again, without realizing she had blown me off just yesterday.  So I don't tell her and start to make fun of her again.  Well, she gets even more explicit and starts talking about how her son is with her, and she wants to make sexy time in a foursome with me  and any old woman I can dredge up for her son.  So I say OK, but I can't call up the old ladies I know cuz it is too early on a Saturday.  Well, I'll spare you any more details, and just say she got mad again and tells me goodbye forever and I am to defriend her.  I tell her I don't have to do anything, she's the one who started it.

Then, just a couple hours ago, I get a message from a woman I conversate with in England, who is an acquaintance from my benzodiazepine addiction days.  She is married to a heart attack patient she doesn't love, and thinks she's in love with me.  She starts off saying she is going to defriend me because of my poor choice in friends.  I kind of know what she is talking about, but I play dumb for a while.  Turns out she got a notification from FB that Eric is now friends with Priya, the Indian nutcase, so she looked her up, and got all jealous.  I'm like, give me a break, I thought she was some random Alpha wanting to connect, and only found out later she is an oversexed psych case in India.   Well a half hour or so later, she asks me what am I going to do about it, since all my friends are being notified that I'm friends with this person, and I say I guess I have to wipe her out from my account.  She says OK, and starts to tell me how to do it (I really didn't know).  So I go to her page, and now she has a big black and white, full frontal nudity pic of herself on the home page.  I had no idea.  I only saw pics of her in a bikini with her face scratched out.  Anyway, I do get rid of her, and I'm again all lovey dovey with Jo, the English babe.  This happens about once every couple months.

In other news, I did get in a good half hour on the treadmill, and another 10 minutes later.  I tried to duplicate my blow on the microspirometer, but today could only manage .93 L in a second, down from 1.09 the other day.  I dunno why, maybe still had some phlegm at the time.  This is still about the same as I was blowing when I first got diagnosed 4 1/2 years ago, so I can't complain.  Then this evening I see a note from a woman who wrote two books about the first person accounts of  folks who have had lung transplants, and she is hosting a chat for tx (transplant) patients at 7 pm.  I eventually get into the chatroom and chat.  I told them about the Christian group who provided me with the nebulizer, and that I didn't have the heart to tell them I'm an atheist.  Well, excuse me for making a joke.  They were all like, "Eric, I think they don't mind you being atheist if they are good Christians, since that's what they do, be charitable toward all God's creatures and everything".  You tell me, is my sarcasm so obscure as to be undetectible in the e chat medium?  I guess it is.  Well I then make it up to the women there and get all sincere.  Turns out one of them is a 15 year lung transplant survivor and another one is over 20 years.  This is good news for a guy like me who expects to be dead in pretty short order.

That pretty much brings you up to date, except for my horrible lunch at Denny's (don't ask me why).  I did also watch a Foo Fighters concert on the DVR, which was very good actually.  Tomorrow I got Master's cup championship Tennis on the tube in the morning, and Patriots in the afternoon.  Life is good!  And I'll try to stay out of trouble on the computer for a change.

Yes, old Stacy Solomon will no doubt call me back for an appt. tomorrow.  She is the lung transplant social worker.  I just talked to Jeff yesterday and he reiterated his willingness to help in any way possible.  I gotta say thank God for friends who stick with you even when maybe they have an excuse not to.  I would never be making it back to my profession without his help.  Then I got Hal, whom you met.  He's a nut for sure, but a pretty quality moral person and friend.  Chris is the other one, and I have no doubt he will be a good support guy when it comes down to it. 

For some strange reason, Chris feels the need to get all alpha male when it comes to his brothers.  I see it even more clearly in his dealings with Jon, than with me.  I'm not sure if you remember last year at the clam place when Chris just went off on Jon for having an opinion about something that was not the same as his, but it was pretty strange to witness.  I'm less confident that he is being nutso in his dealings with me, cuz I could be aggravating him too.  But you must have seen him just kind of roll over me when he wants something his way.  They say you never really grow up when it comes to your immediate family, and I guess that's true.  Chris has the need to "get over" on other people, as my black friend used to say.  It can be the silliest thing in the world, but as long as he comes out one up, he's happy.  Otherwise, nope.  Not to be interfering with your relationship, but it is something you might want to keep in mind as well.  I could give you the developmental psychodynamic causes I suspect are at the root of all this, but you can probably figure that out for yourself.

I scanned a copy of our card in the attachment.  Didn't get them yet, maybe tomorrow.  I picked out the head full of gears logo, as it reflects what we do, testing the machinery of the brain, so to speak.  I dunno how much business we will get from this effort, but Jeff likes the idea, so I'll go along.  We'll still get referrals from docs and the hospital.  That reminds me, I gotta see about getting back my privileges at the local hospital I was an associate at.  I'm getting all kinds of emails from my various insurance companies now.  It feels like I'm in a kind of a countdown to a return to normal life, scheduled to commence 1/1/2013.  I'm really not that sure I can be effective enough to get the job done these days, but only one way to find out.  Worst case scenario is I continue to live in a hand to mouth way on my disability.  It's nice that they let you try to get back to work for a year before you have to make a decision about giving up the support.  So any money I make, will be in addition to my monthly stipend now, for a year anyway.  Also, I just got a notice that because of something or other, my food stamp benefits are going up by 67 bucks a month starting the 13th of  Nov. Yay.  I also have my Obamaphone, and my Obamaglasses for free.  All I need now is an Obamapartment.  I may have to wait more than 2 years for that though, assuming I'm still alive at that point.

Thanks for asking about the treadmill.  Yah I did my 30 minutes, but only once today.  I usually try to do it twice.  When I was out today, it was pretty bad, I gotta say.  The rawness of the weather affects me I think, and maybe I didn't get out all the phlegm I should have before going out.  I had a major coughing fit at the self serve gas station, to the point I thought that maybe my fellow customers were going to call 911.  I think maybe the fumes contributed to my distress.  Maybe I should just go to places where they pump your gas for you.  Then I practically had a panic attack in the liquor store.  I got some Svensk vodka to go with my orange juice, and it was on sale, and also had a 5 dollar rebate.  But I was  so fucked up, I forgot to make the guy give me the receipt from the cash register so I could send in for the rebate.  Hey, five bucks is five bucks.  So I had to go back and wait while he went through all the recent purchases, but I did get it.  I know.  Maybe I shouldn't be buying vodka in my condition.  You could have a point...

So I'm happy to have this communication with you.  My therapist keeps after me to maintain a blog of my thoughts and experiences, but I haven't been able to do that, cuz who would ever be interested in such a thing?  I see now that that's not really the point.  By the way, I have a hard time with him sometimes, cuz he tends to interrupt my stories and give me a long dissertation on whatever he is thinking about that day.  Then because of my memory dysfunction, I don't even know what the fuck I was talking about.  The other day, yesterday actually,  I just told him, hey it's your job to listen to ME.  It's funny, cuz he almost uses our sessions to validate himself in my eyes, seeing that I'm a Ph.D. psychologist and he's a social worker.  To his credit, at the end he did apologize for interrupting me and all, so I said that's OK, I know you have your needs too.  Not sure if he got it.  Anyway, to write, you have to kind of organize your thoughts a little bit.  You might even do some planning and accomplish things you otherwise might not.  I see that my google account has a provision for making a blog, and I think I will look into that.  Although I have to confess to being something of a narcissist, I am realistic enough to know that nobody really cares about my life, so I don't know what I would do with such a blog.  Maybe you just make it on google, then not tell anybody, so nobody has to read it.  That might work.

I don't think of you as a nag at all.  I am actually very grateful to find that you have an interest in my life, and it can only help to have you keep reminding me about things...  You are kind of a very sharp little sister to me, or maybe a favorite niece, considering our ages.  Whatever the outcome, I'm glad to have met you and to talk to you.  I'm not a guy with so many people who care about him that I can afford to throw away those few who do.


So no, Stacy did not call me back today, yet.  I will try not to be paranoid and think that they are not interested in helping me with the lung transplant.  She may be too busy, or on vacation or something.  I'll wait a couple days and try her again next week.  The folks at the hospital (the one in Melrose where I used to have privileges) were nice when I talked to them about suspending my association, which was about 3 years ago now.  I told them about my illness, and they said to just call them back if I wanted to continue being associated with them.  I will have to fill out forms sure, and get a new ID, but that's not really different from when you have to get recredentialed periodically anyway.  It's really kind of honorary thing anyway, since I'm not a physician, and wouldn't be admitting people into the hospital anyway.  It just is kinda good if you can say you have privileges at a hospital.

I did get a call from my oldest friend I guess, Phil from Wayland.  He just lost his GF of 25 years, (i.e., she died) so I asked him to call me and see about going out together soon.  He is a really unique\guy.  So I'm looking forward to that.

I got my headphone amplifier in the mail the other day.  It made my music louder, but it still wasn't as good as I would like.  So I went online and searched for an equalizer/preamp app, and did finally find one that works well.  It is free for 14 days, then you gotta pay 5 bucks for it, and it is well worth it.  So I saved a profile that makes the music sound good, and was making dinner when a song with a lot of bass came on.  Well it blew out my left driver, so the Klipsch phones are toast.  Fortunately, I was prudent enough to get a 3 year warranty on these things, could actually find the paperwork, and looked online for my warranty.  Well it wasn't there cuz I guess I never registered it.  So I call them up, they find it, but they say well this is an extended warranty, and you only got these 5 months ago, so your manufacturer's warranty should still be in force.  So I find a number for Klipsch, and call them.  They won't be open until regular business hours on Monday.  It says on the website though that you should go through the retailer first anyway.  So I call up amazon, and finally get to talk to a human and tell him the whole sad story.  This guy, incredibly, has me go to the order, stick the phones in my cart again, pays for them, and even pays for the shipping.  I will get new phones as soon as the USPS delivers them.  Now that is smart business practice, cuz I'm going to tell everybody I know that Amazon took care of me, when they didn't really have to.  Aren't you glad you read all this?  This is my life!

Yay, I couldn't find my prescription glasses, but I was just in the kitchen getting some OJ, and there they were being worn by a loaf of bread.  Do I remember doing that?  Nope.  I got an invite to a get together for Williams alumni to watch a telecast of the Williams/Amherst football game tomorrow at a bar called "The Point" in downtown Boston tomorrow, so I signed up.  There's free appetizers, and cash bar.  But when I looked at who had confirmed to go, they were almost all recent year grads.  One name was McInerney, who is a famous novelist who was in my class, (Bright Lights, Big City) but I see it is not Jay, but some girl's name.  It's his goddam daughter!  It sucks getting old.  BTW, my therapist told me that there was a copy of Freedom at the local thrift store, and I should get it, since it is about people who are like my family, according to him.  So I did, and got the hardcover for 2 bucks.

So you ask my opinion about you and Chris.  I'll just be as honest and open as I can about that with you, and with him.  It's not as if what I think matters a whole lot anyway, but both of you have asked me about it, so I'll say what I think.  I told him, and I'll tell you, that there are pluses and minuses to your relationship (duh), and each of you has to add them up and see if it is worth pursuing.  Anne's impending death complicates things, of course, but they are independent issues, or should be as much as you can make them.  As much as I have problems with him, Chris is a pretty remarkable guy, and I can see that a woman might want to be with him.  Of course, he's old enough to be your father (easily), but if you don't have a problem with that, I sure don't.  The question is really can you tolerate him catering to his ex, Anne, while she goes through the dying process.  She is nuts, obviously, trying to hang on to a status, of Chris' GF, that was over TEN YEARS AGO, but then again if that's what gets her through the night, I can't really come down too hard on her for that.  Ironically, it is one of Chris' more admirable traits, of being loyal, that puts you all in this situation.  You know, SHE calls me to get my take on all this too.  Anyway, I guess my take is that if you want to hang in there, and continue with Chris after Anne dies, you have a decent chance.  I understand why you might not want to do that, and that's OK too.  I think you are going to be asked to reduce your expectations vis a vis the boyfriend experience with Chris as her death approaches.  The whole thing makes my head ache frankly, and I don't know what I would do.  Fortunately, I have no such entanglements and only have to deal with my own physical decline and looming death.  If you think Chris is "the one" in the way some people think about romance, go for it, I suppose.  On the other hand, you are pretty young (not to mention young and pretty) and will have the opportunity to have something with a lot of other men if you decide to go that way.  That's probably as much, or more, than I should say about it...

No, I'm not splurging necessarily in anticipation of my increase in food stamp benefits.  I don't get my card replenished until the 13th anyway.  Now it will be about 6 bucks a day for food rather than 4 bucks.  I'm not complaining, but it does not exactly signal an significant change in lifestyle.  I'm very conflicted about money in the first place.  While it is probably the case that I will die before I get down to my last dime, that's not exactly the life endgame I had envisioned for myself.  Unless I can get healthier, and more prosperous, I can kiss goodbye the prospects of having any kind of relationship with a woman again.  The ones I would be interested in are not going to be particularly fascinated by my ability to cadge free health care, food stamps and a disability check.  On the plus side, I am experiencing a recovering libido, up from being pretty much dead in that area a couple years ago.  Now it's what am I going to do about it?  Nothing, apparently.  Several years ago now, when my high school sweetheart dumped her husband and came on to me after 30 years, I thought that that might be my final chance.  Now it looks like I was right, but for additional reasons I didn't even consider at the time.  AAAHHHH, it's all my fault, I know.  Can't keep from complaining a little about it though.

So what I did is to open a google blog, write a little introduction, and am putting in it these notes, and some other things I have written trashing some of my cyber enemies, if I think they have some merit, which some of them do.  I have to figure out more about how the blog thing works before I'm going to allow access to it to anyone, and edit what I have put in there of course.  Oh, no I don't have the cards yet.  Were you able to see what I sent you?  I think the head full of machinery thing is kind of cute.

Well almost time to give up on sleeping this night and start on the coffee.  Lying flat makes it harder to breathe for us lungers, and sometimes I never make it to bed at all, but just sleep a few hours sitting up on the couch.  If I am flat in my bed, it can be pretty anxiety provoking if I get air hungry, and then I just get up and start fucking around.  I've been advised to rig an incline in my bed, but haven't gotten around to that yet.  BTW, I don't think you ramble at all, and you are a very good writer, especially considering that English isn't your first language.  I ramble.  Have a good weekend yourself.  I think the Patsies are back from the bye week so I got that to look forward to.  It's just a thrill a minute.  Bye for now.

Friday, November 9, 2012

I just put a couple of thing I had previously written to start off my blog.  Now I will post specifically for the purpose of the blog.  Nothing much is coming to mind at the moment, at 5 am 11/9/2012.  On the agenda is to get my business cards, print out a bunch of letters to academic resources directors with their addresses, put the cards in the envelopes, and tell Jeff I done it.  Might be an idea to keep a record of who I sent the letters to too.

Next, I will be talking to Stacy Solomon about scheduling the next steps in lung transplant.  I got 3 guys to be my support, I just have to make sure I can get them all in on a specific date for the meeting.  Jeff is the only one who likely will have appts. out in the future I will have to deal with, but he'll be willing to reschedule anyway.  Meantime, it behooves me to continue to exercise and lose some weight.  I need some time for that.  So maybe I'll make it for say 2 months from now.

OK enough for now.
BB, I really appreciate your work on sky dancing, and I think you are very smart and correct in your views almost all the time.  Thank you for turning me on to the blog, and for not censoring me anymore.

I must say, however, that occasionally I find what you say a bit doctrinaire, and not terribly well thought out.  For example, just today you wrote, “since when are there rules for what we can hold against someone?”  I’m sure if you stopped to think about that for a minute you could come up with a few such rules.   The Law is full of them.
In the past, you have trashed me for being a self identified progressive, even saying “I despise progressives”.  I still don’t know what you mean by that.
I have a lot more examples of our differences, but that is not my point in the main.  It is this.  I enjoy the sky dancing blog, and would like to be considered a participant in this worthy endeavor.  However, when I see something that grinds my gears, I would like to have the right to say so.  I understand that one of the purposes of this blog is to promote solidarity among like thinking folks, especially women, but there can be too much of a good thing.  I submit that being self critical of the left party line can serve to inoculate us against attacks from some quarters.  In any case, I am not going to stop offering opposing views when I think they’re called for, and I hope they are accepted as the constructive criticisms they are intended as.  You can delete my posts or block me altogether, but I think that is just cutting off your own foot.

I admit that I have not always been a paragon of civility here, nor have I always been treated civilly.  That’s OK.  A few hurt feelings should not deter us from working toward the goal.
Sometimes, I think you tend to react defensively in a knee jerk fashion when you see something you don’t agree with.  I have observed this in your interactions with others on the blog as well as with me.  For example, are you still of the opinion that there should be no rules about what we can hold against a person?  Whole professions, including yours, are largely concerned with just that question, and the answer is not yes.  I think you were just lashing out, without thinking your statement through.
Anyway, I am happy either way.  Either I am allowed to express my thoughts on sky dancing, or I just go away.  I am not willing to sit and think about will this idea get me banned from the blog, before posting.  I am sending this privately, as it is not my purpose to talk critically about you in public.  I do hope we can continue to get along.